Sunday, August 9, 2009

Aiden and Evan - 8/9

Over the last 24 hours, Evan’s lungs have continued to worsen. He is now requiring more support on his ventilator. The doctor said that his chest x-ray shows some signs of chronic lung disease, which will most likely mean he will be on the ventilator for longer than expected. He is also quite puffy since he is holding a lot of fluid around his lungs, a side effect of the indomethacin he was on for his PDA. He is sedated, so he is not opening his eyes as much. It is very difficult to see Evan like this, as just earlier this week he was doing so well. The doctor has said that the chronic lung disease could last for days, months, or years. It all depends on the next few days and how well Evan’s lungs will recover once the excess fluid is gone. We are praying that this will only be a very temporary thing.

Aiden is doing very well. David had skin to skin time with him tonight. Aiden continues on his nasal canula for breathing. He still wears his stocking cap all the time to keep his nasal canula in place. Both boys are tolerating their small volume feedings well.

We had several visitors this weekend at the hospital. It really helped to break the monotony of the hospital. Tomorrow, David and I will return to work. It will be interesting to see how that goes. We will try to get a visit in before work and then a long visit in the evenings. I will try to come some days on my lunch break as well.

Please keep the boys in your prayers, especially Evan’s lungs. Both boys need lots of prayers right now!


  1. David and Janel,
    Our prayers are with you and the boys. I pray that God continues to send a host of angels to be sitting on their shoulders every minute of the day. We love you guys.
    Mike and Lynette

  2. Janel,

    I just wanted you to know that your family is in my prayers as well.