The biggest news today is that they did an echocardiogram on Aiden’s heart and classified his murmur as moderate to severe. Because of this they are going to go ahead and start Aiden on medicine to help the valve start functioning properly. The medicine they use is about 60% effective at correcting the issue and will take several days to work. We should know in about five to six days if it is successful. The downside is the medicine decreases blood flow to the organs and could have some side effects.
Other notes for the day:
- Evan is still on the conventional ventilator and has been doing much better with it. Aiden continues to do well with his breathing.
- They started giving small feedings to the boys today but had to stop again because they are still bringing back up the green bile.
- I (David) changed my first diaper tonight on Evan. As soon as we got the dirty diaper off he started peeing again and peed all over the ointment the nurse has just applied.
- Our friends James and Liz stopped by this evening to visit the boys and us. It was nice to show off our new additions to our friends and we appreciate them visiting.
We also would like to give thanks to our good friends JoeDale and JoNell for brining by Rudy’s barbeque the other night. We have had the pleasure of making several meals out of their generous gift.
I’d also like to give thanks to Janel’s mother, Mary, for helping us out all week. Her presence has made this week much more bearable for us.
And as always, thank you to everyone who has lifted our boys up in prayer over the last week. We could not have made it this far without God’s loving hands helping us. Please continue to pray for Evan and Aiden.
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Thanks for providing this blog! We're praying daily for all of you. What a story the boys will have to be proud of as they grow up.
ReplyDeleteIn our thoughts and prayers,
Lea Ann
Your boys are precious. All of you are in our prayers.
ReplyDeleteShelley Michael
Congrats to the both of you on becoming parents. It is great to read the updates on the boys. The 4 of you are in my prayers! They seem to be fighters and I hope they continue to grow stronger each and every day.
ReplyDeleteBecky Burt
Janel,
ReplyDeleteI am glad to hear that you are doing well and those boys are fighting. I am sorry to hear they wanted into the world so early. Thank you and your husband for this blog so we in the PICU can follow the amazing progress these little ones will and are making. I know you have a ton of support, but let us know if you need anything.
Karly from the PICU